It's Set ---- FINALLY!!!

Just got off the phone with Primary Children's same day surgery, Alex has been pre-registered for his Cath and Biopsy tomorrow. Talked to one of our wonderful Transplant Coordinators and she assured me we are set for tomorrow!! YAY!! We will check-in at 7:30 tomorrow morning. Please keep Alex and his Dr.'s in your prayers tonight that everything goes smoothly tomorrow and the results come back great with zero rejection.

Here are a couple of recent pictures I took of Alex that he didn't know I was watching him!!

WATCHING TV

He put his sister's vest on all by himself!

READING THE PAPER

Too cute!!

I will try and post in the next couple of days with results!

Change Of Plans

Just got notice from the PCMC Cath Lab that they have had to push Alex's annual cath/biopsy back, an emergency has come up. More than anything I am frustrated, but there is nothing I can do. Thank you for all the prayers being said for Alex. I'm now crossing my fingers we don't have anything else happen between now and then, really how many times can this be rescheduled?

Here is a picture from this summer of Alex helping Dad water the flowers. Notice the mischievous grin on his face?

Third Times a Charm??

Or so I hope.

I know there is lots to update, but just a quick note for now. Please pray for Alex that he does not get sick from now to Oct. 6th. Oct. 6th will be the third time I have scheduled his annual biopsy cath lab appt. The two previous times he came down with the common cold and he was admitted to Primary's because of it. Please keep him in your prayers so we can make it to that date healthy.

I promise soon I will update with what's been going on and tons of pictures!!!!

Cardiology Clinic Visit Today

Alex went in for his clinic visit today and it was a GREAT visit. His weight was up (27 lbs 4 oz), all his vitals looked good, and his echo showed no problems with his wonderful heart. Alex and his sister were having so much fun that neither of them wanted to leave.

In the clinic room were some coloring pages. I don't think they left any for other kids. They were having a blast coloring. Alex was also playing with is new, compliments of the lab, Thomas the Tank coloring/activity book. This is the cutest little thing. It is 4 small coloring books, 3 little pages with stickers, and a little box with 4 crayons. He couldn't wait to get it open. He was putting the stickers everywhere. So cute!


Some other great news from today's visit, we get to come off of 2 meds and try once again to go to twice a day Prograf. Last time we tried to go to twice a day Prograf there was nothing but drama for three months with weekly blood draws.

Next visit will be for his 4 year post-transplant cath lab/biopsy. I can't believe it's almost been 4 years. How time flys!

Happy 3rd Birthday Alex

To my little guy, I can't believe it's been 3 years since we began our journey with you. In your 3 short years you have taught us numerous lessons, given us countless scares, and at least a million smiles. We love you so much and hope you have many more birthdays that we may celebrate with you. Mommy hopes you had a wonderful day! I can't wait for you to see your party!